Camden Integrated Digital Record – it’s your personal jigsaw
In Camden we are piecing together your health and social care information. Viewing the pieces together as a whole means your care providers can work more efficiently, and so provide you with the best possible care.
CIDR is due to start sometime this summer (2014) but does not yet have an official start or extraction date. We will update this page once we know.
How will CIDR be used?
- Camden Integrated Digital Record – it’s your personal jigsaw
Imagine you have recently been discharged from hospital and are having a follow up appointment with your GP. Your GP wants to look at your hospital record. Currently the clinician would have to refer to letters received in the post from other health providers. With CIDR he or she can do this quickly and efficiently as well as get a clearer overall view of your care.
Your GP would ask you for your permission for a one-time-only access and you may say yes (or no). If you gave your consent your GP could log in and look at your hospital record there and then, with you. The same is true when you visit a hospital and they wish to see your GP’s record.
This may help the clinicians caring for you have a better overall picture of your health care.
That is the purpose of CIDR, to allow, on a view-by-view basis, any NHS clinician in Camden to look at your medical record, with explicit consent.
Who will have a CIDR record?
Only our patients who are residents in Camden will have a CIDR record – patients registered to us that live in Islington or elsewhere will not have any data extracted to build the record.
So what will my record show?
Information from your health and social care records, for example:
- Recent appointments and emergency visits
- Relevant details about conditions you are receiving treatment for
What will not show on my integrated record?
- Conversations you have had with your care providers
- Sensitive information, including but not limited to HIV status, sexual health, terminations of pregnancy and fertility treatments
A full list can be viewed here.
Is this secure?
Camden Integrated Digital Records can only be viewed from computers within University College London Hospital, Royal Free Hospital, Central & North West London NHS Foundation Trust, Camden & Islington NHS Foundation Trust or at any Camden GP Surgery, and only by authorised health and social care professionals.
NHS Camden CCG has employed a specialist company to test the system to ensure none of the data is accessible from anywhere else or by anyone else other than those who have been authorised.
This is fully audited to ensure that records are only accessed where there is a legitimate need to view the information.
How are my records linked?
NHS Camden CCG are using specially designed matching software. If the software is certain sets of records match, it links them together. This has been thoroughly tested.
How do I know my record won’t contain details of someone else by accident?
- If the software isn’t certain of a match, this has to be manually reviewed.
- If we aren’t sure records are a match, the records won’t be linked.
What are the benefits?
- More efficient care – your care providers will no longer have to spend time requesting your relevant data from other appointments as this information will automatically be viewable in one place
- Working towards preventative care – your care provider will have a rounded view of your record, improving medical decision making and early identification of your future care requirements
This means better care for you.
How is this different to Care.Data or the Summary Care Record?
– Your CIDR & Summary Care Record data is only going to be used for your care. Care.Data is mainly going to be used for Research & Commissioning purposes.
– Summary Care Record and care.data are national programs. CIDR is a Camden-only initiative.
– Care.Data information can be shared / sold to third parties, CIDR data can only used by providers of your care in Camden. Access to CIDR can not, under any circumstances, be given to any organisation outside of Camden or be sold to any researchers or any other third parties.
– Summary Care Record only provides a list of your allergies and medications; so if you are rushed into a hospital the doctors or nurses know that you may be allergic or may have a bad reaction to, certain medications.
What if I don’t want an integrated record?
You can opt out at any time by speaking to one of our reception staff or emailing [email protected]. At any point if you would like to opt back in, just ask. CIDR is a local initiative exclusive to Camden, it has no relation to the Summary Care Record or care.data. Your data will not be shared with these programs or any third parties. For more information email [email protected]
Please find here some Frequently Asked Questions containing useful and brief information about CIDR.